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I'm 2.8% Neanderthal - The Beginning of Genetic Exhibitionism?

Lukasz Olejnik 1 Kutrowska Agnieszka 2 Claude Castelluccia 1
1 PRIVATICS - Privacy Models, Architectures and Tools for the Information Society
Inria Grenoble - Rhône-Alpes, CITI - CITI Centre of Innovation in Telecommunications and Integration of services
Abstract : Direct-to-consumer genetic testing is gaining popularity. How- ever, the sensitive nature of personal genomic sequencing re- sults might not be fully understood by the general public. In this paper we study the examples of disclosure of this sen- sitive information on social networks. We found that Twit- ter users often post their results publicly. We observed that information on ethnic background is much more frequently released than other information, for example relating to dis- ease risk. This data could be of potential value to entities such as insurance companies.We found that about 24% of the analyzed tweets that men- tioned ethnicity results also contained percentage data. In cases of users disclosing more details of their ethnic back- ground, we found about 96% of these profiles also included identifying information and consequently can be attributed to individuals.As a result, external entities such as insurance companies can gain an insight in the genetic test results and in the end the users could be subject to genetic discrimination.
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Contributor : Claude Castelluccia <>
Submitted on : Wednesday, November 26, 2014 - 3:04:07 PM
Last modification on : Wednesday, November 20, 2019 - 7:40:33 AM


  • HAL Id : hal-01087696, version 1



Lukasz Olejnik, Kutrowska Agnieszka, Claude Castelluccia. I'm 2.8% Neanderthal - The Beginning of Genetic Exhibitionism?. Workshop on Genome Privacy, Jul 2014, Amsterdam, Netherlands, Netherlands. ⟨hal-01087696⟩



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